Your questions, answered

If your provider or health system doesn’t have an online patient portal, you can request a copy of your records directly from the provider and upload them to your Novellia account. By law, health care providers subject to HIPAA are required to give you access to your health information when you ask. Our support team can help you import your records no matter the format—paper, CD, fax, or digital—so you can have your complete* history in Novellia.

No. We will never sell your personal health data to anyone, period.

Your medical records, identity, or financial information will not be shared with advertisers, marketers, data brokers, or pharmaceutical companies for profit. You can read the details of our Privacy Policy and Terms of Service on our website. Here is what they mean for you in plain language:

• Privacy protections apply

The personal health data stored in your Novellia account is protected under federal and state health data privacy laws. That means we generally cannot disclose your personal health data without your consent, except in very narrow circumstances required by law (such as when required by a court order).

• Business changes do not change your rights

Even if Novellia is acquired or merges with another company, you will always keep the right to close your account and delete your personal data if you do not want to continue. No one can force you to stay, and your personal health data will not automatically be handed over without your choice.

• No selling, no ads, no hidden tricks

We do not sell your personal health data, and we do not make money from advertising or data brokers. Our business is funded through partnerships in healthcare research, which only use de-identified and aggregated data that cannot be traced back to you.

• Your financial info stays private

You will never be asked for payment to use Novellia, and we do not sell or share your financial information. Any financial information referenced in Novellia’s Privacy Policy simply refers to what might already appear in your official medical records (such as insurance billing data), not your bank account.

• Opting out is always an option

You can delete your entire Novellia account at any time. If you do, all of your records are removed from our systems, and none of your data will be included in research going forward.

• Security infrastructure

We follow strict data protection practices aligned with HIPAA, including encrypted cloud storage and routine security testing, to ensure your personal health data remains protected.

De-identified data is health information that no longer identifies you as a person. To ensure that your personal health data is appropriately de-identified, we follow the de-identified standard promulgated by the U.S. Department of Health and Human Services (HHS) under the HIPAA Privacy Rule. To meet these standards, we remove certain details from your personal health data, like your name, address, phone number, email, or anything else that could be used to identify you. We also make sure there’s no other way for someone to reasonably figure out who you are from the remaining information.

Aggregate data is when we take many people’s de-identified data and group it together. Instead of looking at one person’s record, we combine it to show overall patterns; for example, “30% of patients improved after treatment.” Aggregate data helps us see big trends instead of focusing on any single individual.

Researchers never see your personal information such as your name, address, email, or anything else that could directly identify you. The only data they can access is de-identified and aggregated. For example, researchers might see “30% of patients reported fewer side effects on this treatment,” but they would never see “Ellie Klein took 250mg of ibuprofen and had these side effects.”

When you join Novellia and choose to be part of research by agreeing to have your de-identified health data shared, you are doing something bigger than yourself: you are helping future patients get better, safer care. Your experience becomes part of a greater story, one where the struggles you have faced can make the path easier for someone who comes after you.

Here are a few ways in which the data patients have shared with Novellia has already contributed to ground-breaking research:

• Preventing serious side effects

In breast cancer, some treatments can cause lung problems called interstitial lung disease (ILD). By analyzing de-identified patient records, Novellia helped uncover potential early warnings so patients can have a better chance to be treated safely and avoid serious complications.

• Helping patients get the right treatment faster

In lung cancer, biomarker testing is critical to make sure patients get the right targeted therapy. Novellia’s research showed that many patients were starting treatment before tests were completed. That insight now has the opportunity to drive changes to help doctors test more quickly, so patients get matched with the best treatments sooner.

• Making care more fair and consistent

In breast cancer, guidelines exist for how patients should be treated, but not everyone gets the same level of care. Novellia’s work with leading cancer centers is helping uncover where treatment falls short and could provide doctors with clear steps to make care more consistent across hospitals and communities.

When you share, you are not just contributing data. You are giving a gift to the next patient: someone sitting in a waiting room, scared and uncertain, just like you once were. Your story helps build knowledge that doctors use to save lives, ease suffering, and bring hope to families.

It is about turning your experience into something powerful, something that changes care for the better, for people just like you, and for those who will come after you.

You can update your data sharing preferences through [this] link.

We take protecting your personal health data very seriously:

• HIPAA Privacy Protection Standards

We follow the HIPAA Privacy and Security rules in implementing safeguards to protect your personal health data (the same privacy laws that protect your health information at your doctor's office).

• Limited Access

Only you can access and see your personal health data on your Novellia account.

• Passwordless identity verification

Instead of passwords that can be stolen, we send a simple code to your email when you want to log in.

• Safe Storage

Your personal health data is stored in a secure cloud environment, protected with enterprise-grade security measures used to safeguard millions of users’ data every day.

• Regular Safety Checks

We regularly test our security systems to make sure they're working properly and have a plan ready if anything goes wrong.

• Automatic Backups

We safely back up your information so it won't be lost, using the same security measures as your main data.

• Your Data, Your Choice

You can delete all your information anytime by requesting it through the app. When you delete it, it's gone.

Think of it like a bank vault for your personal health data: multiple locks, limited access, and constant monitoring to keep everything safe.

The records you see in your Novellia account after adding connections are an exact reflection of your medical records pulled directly from your connected health system, which can sometimes be out of date or messy.

• Update

For records that are out of date, you can update them by clicking on the “...” button on the record and selecting “Edit” to make changes.

• Hide

For records that are duplicate or just wrong, you can hide them by clicking on the “...” button on the record and selecting “Hide” to remove it from your view. These records will still be part of your EMR, and will be stored in the Hidden Records section of your Settings page in case you need to retrieve them.

• Add

For records that are missing, you can add them yourself by clicking on the “Add” button and selecting “Individual record”. You can also upload documents or images and have them digitized into new records.

• Something else

For any scenarios that feel like a bigger issue causing incorrect records to be in your account, please contact support so that we can look into bugs or technical anomalies that may be affecting your account.

You always have the right to delete your Novellia account and all your records stored and maintained within your account. To do so, submit an account deletion request through the Support dropdown in the top navigation, and our support team will guide you through the next steps. For your security, deleting your account removes all of your medical records from Novellia’s database. Because of this, deleted accounts cannot be reactivated. If you decide to return after deletion, you would need to create a new account and start the setup process from the beginning.